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Clinical Data Standards and Data Anonymization Considerations for Academic Organizations: International Cross-Sectional Survey

Davide Gaudesi, Richard Ittenbach, Stephen Cameron, Hong Yu, Olusegun Adegoke, Tempei Miyaji, Alexander John Ching Bragat and Reza Rostami

2025-01-15 Volume 6 • Issue 1 • 2025 • Winter 2025

Interoperability of Leigh Syndrome Patient Registry Data with Regulatory Submission Standards

Interoperability of Leigh Syndrome Patient Registry Data with Regulatory Submission Standards

Parag Shiralkar, Pallavi Bakare, Kasey Woleben and Sophia Zilber

2024-01-30 Volume 4 • Issue 1 • 2024 • Spring 2024

Standardizing Paediatric Clinical Data: The Development of the conect4children (c4c) Cross Cutting Paediatric Data Dictionary

Standardizing Paediatric Clinical Data: The Development of the conect4children (c4c) Cross Cutting Paediatric Data Dictionary

Anando Sen, Victoria Hedley, John Owen, Ronald Cornet, Dipak Kalra, Corinna Engel, Avril Palmeri, Joanne Lee, Jean-Christophe Roze, Joseph F Standing, Adilia Warris, Claudia Pansieri, Rebecca Leary, Mark Turner and Volker Straub

2023-02-14 Fall 2022 - Innovative Implementation of CDISC Standards

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Issue: Volume 2 • Issue 3 • 2024 • Fall 2022 - Innovative Implementation of CDISC Standards