Continuing the tradition set forth in the Journal of the Society for Clinical Data Management’s (JSCDM) inaugural issue, my hope is that you will take an opportunity to sit back, relax and digest this collection of peer-reviewed, scholarly articles specifically related to the fields of clinical data science and informatics.
Additionally, I’d like to share some exciting JSCDM-related news with the community.
Firstly, the JSCDM Editorial Board is proud to announce that one of the JSCDM articles published in the Winter 2023 Special Data Sharing Issue was selected as one of the most noteworthy contributions to Clinical Research Informatics in 2023 at the American Medical Informatics Association (AMIA) Summit conference in March 2024! “A Privacy Nihilist’s Perspective on Clinical Data Sharing: Open Clinical Data Sharing is Dead, Long Live the Walled Garden”, authored by Drs. Justin Starren, Luke Rasmussen, Daniel Schneider, Prasanth Nannapaneni and Kelly Michelson, sets forth a compelling approach for data sharing, balancing accessibility, and privacy.
Secondly, the Society for Clinical Data Management (SCDM) is proud to announce its recently formed collaboration with the Multi-Regional Trials Center of Brigham and Women’s Hospital and Harvard (MRCT Center)’s Clinical Research Glossary project. One of the main focuses of our work surrounds the SCDM Glossary, creating not only technical definitions relevant to our ever-evolving industry, but also patient-centric definitions to further develop health literacy. Thank you so much to Patrick Nadolny, Sylvia Baedorf Kassis, Kayleigh To, and Sara Gillespie for making this possibility real!
Lastly, we have implemented a new way of performing our rolling publication process and have named it “Digital First”. To learn more, please go to the official site.
What are the benefits of the “Digital First” collection? Many of our authors are given the opportunity to create a short blurb that describes the essence of their article. From this blurb we create a LinkedIn blast to bring attention to the work. We further collaborate with the SCDM Marketing Team (thank you, Desana Ruskova!) to create an attractive logo. When the article is fully publication ready, it is released to “Digital First”. Our experimenting has helped drive traffic and interest to articles in this Collection. For example, coming in with 3994 views as of this writing, the most viewed article since its publication in December 2023 is “Best Practice Recommendations for Electronic Clinical Outcome Assessment Data Changes”. This is an insightful article that addresses some of the most current controversial Electronic Clinical Outcome Assessment topics, authored by the Critical Path Institute.
Reviewing the articles in this Spring 2024 Issue, I am amazed at JSCDM’s growth since the last letter I wrote as Publications Chair of Data Basics back in 2020. The SCDM global community now has a reputable peer-reviewed, open access journal, and I am honored to serve as its Chief Editor.
Please pull up a seat at the table and send us an article or a letter. Now that we have that seat at the table, let’s continue to grow as a community and build upon it.
“Let us be grateful to people who make us happy; they are the charming gardeners who make our souls blossom.” - Marcel Proust
Please stay tuned with JSCDM as we continue to connect, collaborate, and grow.
Sincerely,
Claudine Moore, MM, CCDM©
JSCDM Chief Editor
Competing Interests
The author has no competing interests to declare.